GOOD TO GO: (Above left) Photo storage containers, with Ethan's designated travel container, laying on the table. (Above right) A cruise portrait from 2015, (left to right) Pam, Ethan, Gavin and Carlito.

their own. Now that they are in college, I bought them each smaller versions. They each have their own organized photo box with a designated "travel" container to take with them when they come home, or for a weekend trip with friends. We will certainly continue to take trips as a family, but their travel is mostly independent now. They certainly don't put limits on themselves just because it takes a little extra work or planning. •

ABOUT THE AUTHOR:

Pamela Aasen is the parent of two adult sons with Usher syndrome. She was a Special Education Teacher for 25 years and most recently was the Early Hearing Detection and Intervention (EHDI) Mentoring and Family Engagement Project Director for the SPAN Parent Advocacy Network from 2017-2022. She is the Education Advisor for Ava's Voice and a Volunteer Ambassador for the Usher Syndrome Coalition.