INFORMATION IS POWER : USEFUL RESOURCES IN THE MYDSC RESOURCE LIBRARY
| Useful info for all ages & stages of life | Specialized resources for self-advocates and caregivers of: | ||||
|---|---|---|---|---|---|
| General Medical Health & Wellbeing | Research Info and Opportunities | Infants & Toddlers | School Age Kids | Young Adults | Older Adults |
| Ask Dr. Chicoine | Clinical Trial Finder | Resources at first diagnosis | Speech assessments | Employment and job training | Regression or Dementia? |
| Wellness webinars | Research Glossary | Breastfeeding Guide | What is Occupational Therapy? | Physical activity | Alzheimer's disease |
| DSC2U digital tool | Studies & Surveys | Early intervention services | Your First IEP Meeting | Relationships | Aging in Place |
| Articles, tip sheets related to specific issues & concerns | Clinical Trial Network | Toilet training | Sibling support | Exploring higher education | Sibling Caretakers |
| Navigating a doctor's appointment | Sleep Apnea Studies | Resources for grandparents | Gift-giving guides | Independent living | Ophthalmology and Audiology |
providing customized, expert-created medical information for families who don't have access to a local Down syndrome clinic: LuMindIDSC.org/DSC2U
- Topic-specific webinars on: Regression, Healthy Eating, Aging, Sleep Apnea, Hearing Loss, ADHD and more (via free myDSC subscription): myDSC.org
- Información en español (Spanish language resources): LuMindIDSC.org → News
RESEARCH AND ADVOCACY : A MOM'S APPROACH
"As a parent, research was one of the most important things I leaned on to help me understand more on how I could help our daughter Kate. The day that she was born, and we received her birth diagnosis, one of the first things I looked up was current research being done on Down syndrome. I wanted to be able to use this information to share with providers in helping us to make informed decisions about Kate's future."
— Nicole White, Ph.D., a mom & research advocate
ALWAYS LEARNING: Nicole White with daughter Kate
For families looking to connect with other families:
- LuMind IDSC hosts an annual Family Weekend at 19 Great Wolf Lodge resorts across North America. A unique and popular tradition, the next Family Weekend will take place September 16 to 18, 2022. For more information, visit: LuMindIDSC.org/familyweekend
- Join the 260,000+ families in the LuMind IDSC community on social media: u Facebook: facebook.com/LuMindIDSC u Instagram: instagram.com/lumindidsc
- Our community hosts 15 audience-driven Facebook groups, designed to facilitate peer-to-peer support for a wide variety of people with ties to Down syndrome. Learn more online at facebook.com/LuMindIDSC
As outlined above, MyDSC is a free, online platform filled with Down syndrome-specific information. Here are some highlights of useful resources that can be found in the myDSC resource library:
Anyone can access this library of information via myDSC online at myDSC.org Registering requires three easy steps:
ABOUT THE AUTHOR:
Hampus Hillerstrom is President/CEO of LuMind IDSC Foundation. Previously, he co-founded and served in executive roles at biotech company Proclara Biosciences. Hampus also worked at the venture capital firm HealthCap, pharma company AstraZeneca, and investment bank Lazard. Hampus holds a master's degree in economics from University of St. Gallen, MBA from Harvard Business School, and MSc in Health Sciences and Technology from MIT/Harvard. Hampus lives in the Boston area with his wife and children. Their oldest son, Oskar, has Down syndrome.