RELIABLE DOWN SYNDROME RESOURCES FOR EVERY FAMILY, FOR EVERY STAGE OF LIFE

BY HAMPUS HILLERSTROM

It's no secret that parenthood is a state of constant improvisation. We're all adapting, adjusting, figuring things out on the fly, every day (every hour!). There are many times when we just… guess… and then hope we guessed correctly. No matter how much we prepare, our kids surprise us, and we are forced to re-invent the plan.

I like plans. I like knowing my options. I'm a data lover, am always looking for the latest research, and usually approach issues armed with information. As the parent of an 8 year old with Down syndrome, I couldn't always find reliable resources when I needed them; and by the time I found what I needed, we were already on

to the next problem – that's how quickly life changes in an exceptional family. I used to be consistently frustrated by the lack of easily accessible, centralized information available for people with Down syndrome and their families.

Thankfully, I lead LuMind IDSC, a national Down syndrome organization dedicated to providing families with reliable resources and responsive research. Our organization launched a one-of-akind program called myDSC (my Down Syndrome Community) to help families access good information in an easy way. As the centerpiece of a large constellation of information, resources, and community connections myDSC provides all for free, to families like mine, who are daily navigating the world of Down syndrome.

myDSC is a digital platform for verified Down syndrome resources and tools. It is a free membership portal with more than 700 curated resources, customized libraries of information, and special member discounts with external vendors. Designed by