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SEVEN HONORED FOR CHAMPIONING GLOBAL HEALTH WORK WITH GOLISANO GLOBAL HEALTH LEADERSHIP AWARDS

WORLD STAGE: 2019 Golisano Global Health Leadership Award Honorees: (Seated from left to right) Luc Marks, Ann Costello, Nyasha Derera, Kamal Bani-Hani, Ashok Dhoble; (Standing from left to right) Adnon Villamayor, Ying Feng, Javier Vasquez, Manoj Shah, Jayna Shah, Peter Seidenberg, Renee Manfredi, Drew Boshell, Reena Kumar

The honorees were announced at the Special Olympics World Games in Abu Dhabi.

The Golisano Foundation and Special Olympics honored, last March, seven healthcare organizations and professionals who are on the frontlines of bringing essential and often unprecedented health care services to the most marginalized people on earth, those with intellectual disabilities (ID).

The Golisano Global Health Leadership Award, named for philanthropist and Paychex founder Tom Golisano, was presented to seven recipients by Golisano Foundation Executive Director Ann Costello at a ceremony today in Abu Dhabi at the 2019 Special Olympics World Games.

The Golisano Global Health Leadership Award was established in 2016 to recognize the progress being made around the world to increase access to essential health care for people with ID. It is Special Olympics' highest honor for health partners.

Special Olympics' highest honor for health partners. The honorees are health champions in their countries. Their extraordinary efforts are fulfilling the goals, values, mission, and targets of Special Olympics' global health strategy, made possible by the Golisano Foundation. This award recognizes individual leaders and organizations that promote inclusive health systems, wellness, and fitness for people with ID.

"As we honor the 2019 Golisano Global Health Leadership Award honorees we recognize the impressive work health care professionals can achieve to care for a marginalized population," shared Ann Costello, Executive Director of the Golisano Foundation. "We applaud these individuals and organizations and challenge others to make the same strides for people with ID."

"These recipients have demonstrated their commitment to ensuring inclusive health for people with intellectual disabilities is possible in every corner of the world," said Mary Davis, Special Olympics CEO. "They are making strides to help Special Olympics reach our global target of facilitating access to health for 11 million people with ID by 2020."

The seven global finalists were selected from a record 105 recipients of the 2018 regional Golisano Health Leadership Awards by a Special Olympics International cross-departmental team of Special Olympics athlete leaders, Healthy Athletes Global Clinical Advisors and a representative from the Golisano Foundation.

Kenya: Lions Sight First Eye Hospital, for making significant impact in follow-up care for Special Olympics Kenya athletes. In the past five years, the hospital has donated more than 1,000 eye glasses and conducted more than 15 surgeries, free of charge for Special Olympics Kenya's athletes.

India: Dr. Ashok Dhoble, the Honorary Secretary General for the Indian Dental Association (IDA), for collaborating with Special Olympics and the IDA to sign an MOU committing to year-round access to oral healthcare to Bharat athletes and caregivers.

China: Hua Dong Hospital, for forming a medical volunteer team to support Special Olympics Healthy Athletes screenings and establish a year-round Special Olympics Health Support Project team. The Health Project team has conducted Healthy Athletes events in 17 cities and completed more than 12,000 screenings.

Belgium: Belgian Dentists Collaboration, for forming a "National Collaboration Platform" for dentists in Belgium to achieve better oral health outcomes for people with intellectual disabilities. Led by dentists Dr. Luc Marks and Dr. Michel De Decker, both Special Smiles Clinical Directors, through a national collaboration, four major Belgian Universities partnered with all dental professional organizations to improve the oral health of people with ID.

Paraguay: Dr. Dorisel Ferreira, the Director of the Third Health Region of the Ministry of Public Health and Social Welfare, for recruiting staff from the Ministry of Public Health and Social Welfare to volunteer at Healthy Athletes, as well as getting the Ministry of Health to provide the equipment necessary for Healthy Athletes events. Dr. Ferreira has created a network for follow-up care, making it possible for athletes and their families to get medical care, dental care, immunizations, and specialty care at local hospitals.

Jordan: Professor Kamal Bani-Hani, President of Hashemite University, for collaborating with Special Olympics Jordan on health, education, and sports. Hani-Bani works with students in sport science, special education, and medicine to volunteer within Special Olympics Jordan's health and fitness programs and at competitions and events. This partnership has raised awareness among a new generation of professionals on the importance of community inclusion for people with ID.

USA: Dr. Peter Seidenberg, a family and sports medicine physician at Penn State Sports Medicine College, for evaluating, strengthening, and contributing to the global roll-out of MedFest, and working with Special Olympics Pennsylvania to create a directory of providers who will accept athletes in need of follow-up care. Dr. Seidenberg is currently developing Continuing Medical Education lectures to train healthcare providers how to deliver quality care to people with ID and work to reduce health disparities.

The Golisano Foundation is making Special Olympics Health work possible globally, and has invested $37 million to create and expand Special Olympics Healthy Communities throughout the world. Golisano's gift is the largest received by Special Olympics, and is also the largest single gift ever given by Tom Golisano and his Foundation.

UNDERSTANDING THE FAMILY CONTEXT: AUTISM'S EFFECT ON PARENTS AND SIBLINGS

The reverberations of autism spectrum disorders among parents and siblings can be complex. Parents may grapple with the impact of their child's initial diagnosis, wrestle with the tension between their professional ambitions and family obligations, and labor to maintain a healthy union with their partners. Brothers and sisters may be given less attention, asked to assume a more adult role than they feel ready for, or strive for meaningful connection and communication with their sibling and parents.

Although the energy of clinicians, teachers, and other professionals working with individuals with autism spectrum disorder is often focused intensively on the child who is diagnosed, the practitioner can also be an invaluable resource for the child's family.

Title: Autism and the Family: Understanding and Supporting Parents and Siblings Author: Kate E. Fiske Paperback: 336 pages Publisher: W. W. Norton & Company Publication Date: February 7, 2018 ISBN-13: 978-0393710557 Available at amazon.com and barnesandnoble.com

Drawing upon clinical research and firsthand family interviews, this book helps clinicians understand the experiences of parents and siblings of a child with ASD from the time of diagnosis through adulthood. It provides clear recommendations for sensitive, informed professional support. Step-by-step in each chapter, Fiske elucidates such vital subjects as:

• Understanding the experience of diagnosis • Recognizing patterns of parent stress over time • Appreciating and navigating the effects of ASD on relationships between parents • Integrating grandparents and other extended family in care and treatment • Understanding a family's culture • Identifying and developing effective coping strategies • Building a strong rapport with parents and family • Guiding parents in the treatment of autism And many more, including key takeaways for assisting families in managing feelings of grief and guilt, navigating support options, treatment resources, and related financial concerns, and calibrating the division of labor in the home. The book has ready-to-implement resources and approaches for effective professional care in school and clinical settings. Autism and the Family supplies all the foundations necessary for professionals to understand the full impact of ASD on the child, siblings, and parents; and cultivate an empathic, supportive approach to treatment for the entire family..•

And many more, including key takeaways for assisting families in managing feelings of grief and guilt, navigating support options, treatment resources, and related financial concerns, and calibrating the division of labor in the home. The book has ready-to-implement resources and approaches for effective professional care in school and clinical settings. Autism and the Family supplies all the foundations necessary for professionals to understand the full impact of ASD on the child, siblings, and parents; and cultivate an empathic, supportive approach to treatment for the entire family.